Celebrating more of

life's moments.

Choosing joy and celebration in all the really hard parts of life can be a challenge, but we believe there's no better way to live life. When receiving a life-limiting diagnosis, there will be hard times, but love exists here too. Together, we can find joy.

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OUR MISSION

More birthdays, more milestones, more memories. The Stella Effect is here to support families who have a child with Trisomy 18 or Trisomy 13 through celebration, advocacy, and community. Our mission is to celebrate your baby through every beautiful and hard moment and to fight alongside you, so you never have to fight alone.

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FIRST THE PAIN.

THEN THE WAITING.

THEN THE RISING.

When you learn that your child has a life-limiting diagnosis, it can be hard to find others you can turn to for support. We want to be a community that helps you find answers to tough questions, learn about the latest research, connect you with others in our community or nonprofits, and find Trisomy friendly hospitals that best suit you and your family.

her story

Meet our sweet stella

Our middle daughter, Stella, is how we got here and where we're going. In 2019 Stella was born with Trisomy 18, a life-limiting diagnosis. She lived for 39 beautiful days. Yes, our story is heartbreaking, but it's important to preface that she brought us and still provides us more joy than we could have imagined! The love that she brought to our lives will forever outweigh the pain. Stella opened our world to a whole community of other babies who need the love, advocacy, and support we provide through The Stella Effect.

SHE IS OUR WHY.

Our mission was shaped because of her. We are here to help other families in all the ways others helped us. Whether that’s celebrating your baby, being a tool for education and awareness, or providing tangible resources. We are here to validate your pain and grief, while also giving a glimpse of hope.

How we can help...

+ BIRTHDAY PARTIES

+ attend t13 & t18 week at cck

+ seeking fair care

+ future grief retreats (soon!)

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Want Community?

Join our Facebook group to connect with other families, like yours, to get the support you need!