02. Finding Fair Care
If you're reading this, it's likely you are facing what we've faced. You've heard "your baby will only live a couple hours or days at most" or "we've never treated a baby with Trisomy 18/13" or "you need to reconsider termination" and the list goes on and on. If this is you, I first want to say, you're not alone and I'm sorry for the pain you've endured. If you're reading this, it's likely you've chosen to continue your pregnancy at a hospital that doesn't respect your wishes or views this as cruel. We've been there and we are here to help you find the respectful and loving care your child deserves, regardless of the outcome. Moving for fair care is one of the hardest endeavors we faced. After spending weeks talking to other moms, talking to cardiologists across the country, and deciding on a hospital where we knew our daughter would receive fair care, we were then left putting the pieces together of how to pack up our lives to make this happen.
When families move for fair care they often face the impossible task of losing incomes, paying for a short term apartment or hotel to live for weeks or months, juggling kiddos back home, splitting duties with a spouse or partner, and traveling back and forth as needed. We are here to make this part easier for you. The Stella Effect helps families who are traveling for fair care by helping financially with housing, food, and travel.
DETAILS...
Fill out a contact form to find out if we have the resources and availabilty to help. We will reach back out, set up a time to talk and help in any way we can. We will help connect you to the closest Trisomy friendly hospital as well as connecting you to other parents in that area. After you've made plans to move, we will coordiante on what's your biggest need and help financially as much as we can, whether that's booking a week(s) of hotel rooms, sending you gift cards for food, or booking your flight across the country. We are here to make your life easier and for this transition to be the tiniest bit smoother so you can focus on what matters - the beautiful life you are bringing into this world.