We couldn’t do this without you.
We are so thankful to our sponsors who made this week possible. Please take a moment to learn their stories, their love for our kids, and to appreciate their efforts and big hearts. This week couldn’t have happened without them.
Bill & Elise Luckey
As Stella’s great aunt, I’m grateful for the opportunity to be a part of this wonderful community of love and support for Trisomy 13 and 18 families. Stella will always be our North Star, guiding the work of this organization.
HANNA BRUMLEY
As Stella’s aunt, I am extremely blessed to know and to be a part of the strong and loving Trisomy 13 and 18 community. These families are some of the strongest people out there. Stella taught me (Aunt Hanna) more than I will ever know about love, family, patience, and empathy. Stella is the brightest star in my sky and reminds me every day we all need each other.
DERBY CITY NORSEMEN
Our sincere thanks to Aldridge Electric for their sponsorship of The Stella Effect! Aldridge’s decision to support our camp stems directly from their culture of charitable outreach and their deep commitment to backing the families within their workforce. Inspired by our daughter Izzy’s journey with Trisomy 13, Aldridge contributed to this year’s stay at The Center for Courageous Kids (CCK), and we are so grateful. -Kailey Farmer (Izzy’s mom)
EC CARVER PHOTOGRAPHY
A heartfelt thank you to Elizabeth Carver of EC Carver Photography for helping us preserve the magic of camp through her remarkable photography. With kindness, gentleness, and a joyful spirit, Elizabeth has a gift for capturing the authentic moments that families will cherish forever. We are incredibly grateful to have her with us for a second year, ensuring these precious memories live on long after camp ends.
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DON & BETTY SPOELKER
We are grateful for Don and Betty Spoelker’s generous, annual donation to The Stella Effect and their ongoing encouragement and support for our mission.
MEET OUR SPONSORS
EXTRA TO LOVE
Extra To Love is a non-profit benefiting families of people with Trisomy 13 and Trisomy 18, genetic conditions in which an extra chromosome is present. ETL provides financial assistance for costs associated with supporting the life of an individual with one of these diagnoses and aims to connect and support the community through our podcast and social media content. The Trisomy 13 & 18 community has many gaps in support and ETL is honored to work to fill those gaps, as we believe extrachromosomes are just Extra To Love.
TRACI & WILLIS POOLER
We proudly support the Stella Effect through our love for Stella and the entire Spoelker family. Our niece was an incredibly special little girl. We were blessed to be able to see her and spend precious time together during her short yet impactful life. Although she is no longer physically with us, we continually feel her spirit, strength and love. We encourage everyone to support Trisomy 13 and 18 families through the Stella Effect. It has and continues to be a blessing in our lives and the lives of others.
WEITOR FAMILY
Grace Victoria was a fierce and joyful light in this world. A proud Trisomy 13 warrior, she lived boldly and beautifully for six and a half incredible years before passing away in March of this year. Grace went on many adventures and approached life with wonder, laughter, and bravery. She was her family's greatest joy — a rule breaker, trailblazer, and warrior who constantly defied expectations and loved with her whole heart. Her spirit is dearly missed by our entire community, but her impact lives on in every story we tell and every child we celebrate. We are forever grateful to her family for continuing to honor her legacy with us.
- Meet our Special Moments Sponsorship Level
- Meet our Special Moments Sponsorship Level
KAILEY FARMER + VARIOUS IN-KIND DONORS
A huge thank you to one of our camper moms-turned-volunteers, Kailey Farmer, who took the initiative to secure donations for our welcome bag surprises and raffle giveaways. Every item was thoughtfully selected to accommodate and support the diverse, unique needs of our campers and their families.
We are incredibly grateful to the following companies and individuals for their generosity: See Me Thrive, Pump Packs, Billy Footwear, 3D Tubie Dad, Thera Threads, Little Green Radicals, No Reception Club, Tobiq, Rifton, Youth Crews, Lairos, We Carry Kevan, Sand Cloud, Magnetic Me, Abrams Nation, Testa Seat, The Baldwins, Bogg, the Farmer family, Omie & Co., Verve Coffee Roasters, Kendra Scott, and many others who helped make this year's camp experience even more special.
Thank you to each donor for your generosity, and an extra special thank you to Kailey for going above and beyond to make every family feel welcomed, celebrated, and cared for from day one.
LAREE + CO
Laree + Co. is a clothing brand that was founded in 2018 as Lily Rose Boutique, in honor of Lillian Rose. In 2020, the company rebranded as Laree + Co. with a mission to create cute, comfortable, and accessible clothing for children of all abilities. They take pride in being size inclusive, offering sizes ranging from Micro-preemie to 3X. The brand aims to make sure that all children can feel confident and stylish in their clothes, regardless of their abilities. Each LC collection is named after a medically complex child or angel. They hope that when you hear their name, rather than thinking of a brand, you think of all the sweet ones they are representing. “Wear more than a brand, wear a story.™️” The Lillian Rose Foundation was established as a tribute to Lillian Rose and initially provided care packages to medically complex families. The foundation shifted its focus to supporting grieving parents and providing funeral funding for neonatal and pediatric funerals. They believe that families going through such a difficult time should not have to worry about the financial burden of laying their child to rest.The foundation strives to offer resources and assistance to help ease the stress during this challenging period.
Lils had mosaic Trisomy 18 and lived for nearly 5 beautiful years earthside before moving to heaven in 2021. She was bright, funny, and so very brave. Her bright blue eyes look deep into your soul, and her smile was breathtaking. She was the essence of joy and magic. Her story is so far from over as she continues to live on through so many.
Thank you to Laree + Co and the Lillian Rose Foundation for pouring so much love into our camper families. From the custom bags, shirts, and meaningful goodies inside — to supporting every apparel launch and leading the charge on “The ___ Effect” birthday fundraisers — your impact is everywhere. The special touches you help make possible aren’t just thoughtful extras; they’re reminders that our children and families are seen, celebrated, and deeply loved.
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CHARITY NELSON + SWITCH ADAPTIVE TOYS
Thank you to one of our board members, Charity Nelson, for connecting us with Switched Adapted Toys, to donate a toy for each camper, along with a 3D-printed switch, designed to activate with minimal force, making them accessible for users with limited strength or mobility. Our camper families loved this special surprise!
THE WILLARD FAMILY
Amaris Willard, 11 years old, is the sunshine of her family. She lives in New Mexico with her mom, dad and big sister, Lyncoln Willard. They live at Misfit Farm where her mom collects all kinds of animals such as miniature cows, a miniature donkey, rescue horses, rescue donkeys, rescue ducks, rescue bunnies and chickens.
At the time of her birth, Amaris was the first trisomy baby to leave the hospital at UNMH that the doctors and nurses had seen thrive. Over the years, the team at the hospital has now seen multiple children with trisomy thrive in our state. Many people have told Amaris and her family that even though she is nonverbal they truly believe in God and are now believers because of her story and her testimony. Amaris loves her family, her caretakers, music, light-up toys, FaceTiming her best trisomy friend Esther in Oklahoma, and being outside. Her best friend is truly her dad, Cody (her mom is very jealous that dad is the favorite). Amaris’ family is dedicated to supporting other trisomy families and their struggles.
It is an honor to give back to a community that was and has been so amazing to us during our journey. We are so proud to support The Stella Effect and all that it provides to the Trisomy community.
THE EDWARDS’ SYNDROME ASSOCIATION
The Edwards Syndrome Association exists to advocate for equitable medical care, advance education, and strengthen support systems for individuals living with Trisomy 18 and their families.
We empower caregivers through trusted resources, professional engagement, and collaborative partnerships that enhance healthcare navigation and community inclusion.
To learn more about The ESA and ESA programming and resources, visit www.edwardssyndrome.org or follow The ESA on social media.
ELIZABETH PETERSEN
Elizabeth attended camp for the second time this year with her daughter, Eleanor. After experiencing the incredible community and joy camp offers, Elizabeth helped spearhead fundraising initiatives and secure donations to enhance the camper experience, including cooling towels, toys, fans, hand sanitizer, and refrigerators to help keep our campers comfortable and having fun. Thank you so much, Elizabeth, for everything!
KIM ROBINSON
Kim generously donated 3D-printed G-tube wrenches for every camper family. We love seeing members of our community, even those who couldn’t be at camp this year, find ways to shower our families with love and support. It’s a beautiful reminder that our community extends far beyond the families who are together at camp.
- Meet our Swag Bag Sponsorship Level
- Meet our Swag Bag Sponsorship Level
NAME
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CHATBOOKS + COURTNEY EVANS
A special thank you to Chatbooks for their generous support of our camper swag bags and for helping create a meaningful keepsake for our families. This year, every camper family will receive a personalized camp memory book filled with photos from their time together—a beautiful way to remember the joy, connection, and unforgettable moments shared at camp. They also kindly printed our program booklets!
This incredible gift is all thanks to Courtney Evans, angel mom to Junnie, member of The Stella Effect Board of Directors, and Chatbooks team member. Courtney's dedication and generosity made this project possible, and we are so grateful for her heart, creativity, and commitment to making camp even more special for our families.
Thank you, Chatbooks and Courtney, for helping preserve these cherished memories for years to come.
- Meet our Advocates for Trisomy 13 & 18 Sponsorship Level
- Meet our Advocates for Trisomy 13 & 18 Sponsorship Level
BaBa and MorMor are so thrilled to take this opportunity to highlight and uplift our precious granddaughter, Stella Spoelker. Not in our wildest dreams could we have imagined the powerful impact Stella continues to make on this world and the Trisomy 13 and 18 families. There’s not a single day that goes by where we don’t think about her and give thanks for the 39 days we were able to see her, touch her, and love her. And while we can no longer physically touch her…she continues to touch us and is ever present. Continue to change the world, sweetheart, as we all come to understand The Stella Effect!
ALDRIDGE
Our sincere thanks to Aldridge Electric for their sponsorship of The Stella Effect! Aldridge’s decision to support our camp stems directly from their culture of charitable outreach and their deep commitment to backing the families within their workforce. Inspired by our daughter Izzy’s journey with Trisomy 13, Aldridge contributed to this year’s stay at The Center for Courageous Kids (CCK), and we are so grateful. -Kailey Farmer (Izzy’s mom)
Sarah Townswicks
- Meet our Travel Sponsorship Level
- Meet our Travel Sponsorship Level
NELSON FAMILY FOUNDATION
AMBER SCUDERI
A fourth-time camper and fellow medical mom, Amber (Nuggie’s mom) knows firsthand what it takes to show up for camp. In addition to caring for her own family, she generously donated door name signs to make it easier to know who is in each den, and they were just SO cute and a fun keepsake. We’re in awe of the time, love, and heart she pours into this community. Thank you, Amber!
Nelson Family Foundation supports all causes related to children inpatient and ongoing, extensive medical care for babies and children. Our daughter Maggie was born in 2020 with a genetic condition called Trisomy 18 or Edward’s Syndrome. The first few years of her life were full of uncertainty and fear as we navigated life in the way God intended for her. She just celebrated her 3rd birthday. Nelson Family Foundation was inspired by her and the light she continues to spread across the world.
NAME
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- Meet our Fundraising Family & Friends
- Meet our Fundraising Family & Friends
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bio here
Thank you to our large donors. Our programs aren’t possible without your support
Andrew and Molly Tuller
Dean and Val Adams
Chris Holtman
The Kleber Family in honor of Reece
The Garrett Family
Kishore and Kitty Palla
D.D. Hendrickson
NAME
bio here
NAME
bio here
NAME
bio here
- Meet the Campers Fundraisers
- Meet the Campers Fundraisers
Thanks to the incredible generosity of our “Meet the Campers" fundraiser donors, we're able to continue making camp possible for Trisomy 13 and Trisomy 18 families.
We'd like to recognize the following supporters, whose generous gifts ranged from $250 to $2,000!
Arlen Nipper, for supporting overall camp costs
Mina Perkins, for supporting Harper's family
Cindy McGhee, for supporting Anna’s family
Rob McPherson, for supporting Ayla's family
Julie Irmeger and Tim Taylor, for supporting Izzie's family
Summer Grace Lopez, for supporting Nuggie's family
Sean & Jude Gogan, Gerry Sweeny & Franklin Albro, and the Hutchinson Family, for supporting Riley’s family
Marti Bowman, for supporting Eleanor’s family
Jacob Johnson, for supporting Miley & Mae’s family
Every gift makes a difference, creating joyful and lasting memories for our families. THANK YOU FOR YOUR SUPPORT.
Aaron Cromer
Abbie Rogers Photography
Abby Hagemeyer
Ada Ortega
Alexander Jeng
Amanda and Jeff Gilmore
Amanda Trojan
Amy Thompson Wells
Angela Dehel
Anubhuti Jain
Anya S
Araceli Medina
Brianna Smith
Brittani Adams
Brooke Fontenot
Bryan Gilmore
Bumi Turpin
Carol Gray
Carol & Charlie Hess
Cat Redding
Catherine Knight
Cathryn Cash
Chelsea Pardue
Chinmay Patwardhan
Christy De la Hoya
Christina Hurley
Christine Shreve
Clarissa Jacknow
Courtney Carter
Cynthia Young
Daphne Evers
Darcy Streetman
Davena Ramkarran
David Erb
Dawn Hart
Diamuid Cronin
Doug and Chelsea Spoelker
Elisa Armenta
Ellen and Paul Bielewicz
Emma Cassoni
Erin Hettick
Erik L
Fajlaune Feigle
Franklin Heller
Galen Hellwarth
Gilbert Lee
Heather Hartmann
Heather Schimmel
Jan Krennerich
Jenny Eberhart
Jess Seandel
Jillian Myers
Judy Hellwarth
Kara Iqbal
Katy and Ben Lyvers
Kelsey Chrisco
Keri Page
Kimberlj Shumate
Kimberly Kelleher
Kisti Wright
Kyle Elmore
LeAnn Gaerke
Linda Bobinger
Lindsey Tanner
Madison & Andrew Dehel
Malinda Wade
Manya Scheps
Marie Walton
Mark Coleman
Megan Bailey
Megan DeRuiter
Meredith Willard
Michelle Nichols
Mike Giacaman
Nancy Frydrych
Nick Severtson
Nicole Benavente
Patrick Tuckey
Quantavia White
Ray Zablocki
Renee Berkowitz
Sam Trocquet
Samantha Klein
Sandi Gilmore
Sarah Matthews
Sarah Outman
Sarah Thimmesch
Sean Tuggle
Shannon Roque
Sherri Worthen
Smiling for Samuel
Stacy Court
Stacey Kendall
Stephanie Chun
Sue Ann Choate
Summer Grace Lopez
Susan Cobin
Suzie Richards
Teresa Keffeler
The Hegarty Family
Thorpe McConville
Tiffany Pasillas
Tim Taylor
Tracy Espinosa
Vanessa Quigley
Veap Tale
Vicky Benavente
Victoria Kenney
Wandelin Littlejohn
Ward Family
We couldn’t do this without you.
We are so thankful to our sponsors who made this week possible. Please take a moment to learn their stories, their love for our kids, and to appreciate their efforts and big hearts. This week couldn’t have happened without them.
Bill & Elise Luckey
As Stella’s great aunt, I’m grateful for the opportunity to be a part of this wonderful community of love and support for Trisomy 13 and 18 families. Stella will always be our North Star, guiding the work of this organization.
HANNA BRUMLEY
As Stella’s aunt, I am extremely blessed to know and to be a part of the strong and loving Trisomy 13 and 18 community. These families are some of the strongest people out there. Stella taught me (Aunt Hanna) more than I will ever know about love, family, patience, and empathy. Stella is the brightest star in my sky and reminds me every day we all need each other.
NAME
bio here
NAME
bio here
NAME
bio here
DON & BETTY SPOELKER
We are grateful for Don and Betty Spoelker’s generous, annual donation to The Stella Effect and their ongoing encouragement and support for our mission.
MEET OUR SPONSORSEXTRA TO LOVE
Extra To Love is a non-profit benefiting families of people with Trisomy 13 and Trisomy 18, genetic conditions in which an extra chromosome is present. ETL provides financial assistance for costs associated with supporting the life of an individual with one of these diagnoses and aims to connect and support the community through our podcast and social media content. The Trisomy 13 & 18 community has many gaps in support and ETL is honored to work to fill those gaps, as we believe extrachromosomes are just Extra To Love.
- Meet our Travel Sponsorship Level
- Meet our Travel Sponsorship Level
NAME
bio here
- Meet our Special Moments Sponsorship Level
- Meet our Special Moments Sponsorship Level
NAME
bio here
NAME
bio here
NAME
bio here
NAME
bio here
NAME
bio here
NAME
bio here
NAME
bio here
NAME
bio here
NAME
bio here
- Meet our Swag Bag Sponsorship Level
- Meet our Swag Bag Sponsorship Level
NAME
bio here
NAME
bio here
- Meet our Advocates for Trisomy 13 & 18 Sponsorship Level
- Meet our Advocates for Trisomy 13 & 18 Sponsorship Level
BaBa and MorMor are so thrilled to take this opportunity to highlight and uplift our precious granddaughter, Stella Spoelker. Not in our wildest dreams could we have imagined the powerful impact Stella continues to make on this world and the Trisomy 13 and 18 families. There’s not a single day that goes by where we don’t think about her and give thanks for the 39 days we were able to see her, touch her, and love her. And while we can no longer physically touch her…she continues to touch us and is ever present. Continue to change the world, sweetheart, as we all come to understand The Stella Effect!
ALDRIDGE
Our sincere thanks to Aldridge Electric for their sponsorship of The Stella Effect! Aldridge’s decision to support our camp stems directly from their culture of charitable outreach and their deep commitment to backing the families within their workforce. Inspired by our daughter Izzy’s journey with Trisomy 13, Aldridge contributed to this year’s stay at The Center for Courageous Kids (CCK), and we are so grateful. -Kailey Farmer (Izzy’s mom)
NAME
bio here
Sarah Townswicks
NELSON FAMILY FOUNDATION
Nelson Family Foundation supports all causes related to children inpatient and ongoing, extensive medical care for babies and children. Our daughter Maggie was born in 2020 with a genetic condition called Trisomy 18 or Edward’s Syndrome. The first few years of her life were full of uncertainty and fear as we navigated life in the way God intended for her. She just celebrated her 3rd birthday. Nelson Family Foundation was inspired by her and the light she continues to spread across the world.
NAME
bio here
- Meet our Fundraising Family & Friends
- Meet our Fundraising Family & Friends
NAME
bio here
Thank you to our large donors.
Our programs aren’t possible without your support
Andrew and Molly Tuller
Dean and Val Adams
Chris Holtman
The Kleber Family in honor of Reece
The Garrett Family
Kishore and Kitty Palla
D.D. Hendrickson
NAME
bio here
NAME
bio here
NAME
bio here
- Meet the Campers Fundraisers
- Meet the Campers Fundraisers
Thanks to the incredible generosity of our “Meet the Campers" fundraiser donors, we're able to continue making camp possible for Trisomy 13 and Trisomy 18 families.
We'd like to recognize the following supporters, whose generous gifts ranged from $250 to $2,000!
Arlen Nipper, for supporting overall camp costs
Mina Perkins, for supporting Harper's family
Cindy McGhee, for supporting Anna’s family
Rob McPherson, for supporting Ayla's family
Julie Irmeger and Tim Taylor, for supporting Izzie's family
Summer Grace Lopez, for supporting Nuggie's family
Sean & Jude Gogan, Gerry Sweeny & Franklin Albro, and the Hutchinson Family, for supporting Riley’s family
Marti Bowman, for supporting Eleanor’s family
Jacob Johnson, for supporting Miley & Mae’s family
Every gift makes a difference, creating joyful and lasting memories for our families. THANK YOU FOR YOUR SUPPORT.
Aaron Cromer
Abbie Rogers Photography
Abby Hagemeyer
Ada Ortega
Alexander Jeng
Amanda and Jeff Gilmore
Amanda Trojan
Amy Thompson Wells
Angela Dehel
Anubhuti Jain
Anya S
Araceli Medina
Brianna Smith
Brittani Adams
Brooke Fontenot
Bryan Gilmore
Bumi Turpin
Carol Gray
Carol & Charlie Hess
Cat Redding
Catherine Knight
Cathryn Cash
Chelsea Pardue
Chinmay Patwardhan
Christy De la Hoya
Christina Hurley
Christine Shreve
Clarissa Jacknow
Courtney Carter
Cynthia Young
Daphne Evers
Darcy Streetman
Davena Ramkarran
David Erb
Dawn Hart
Diamuid Cronin
Doug and Chelsea Spoelker
Elisa Armenta
Ellen and Paul Bielewicz
Emma Cassoni
Erin Hettick
Erik L
Fajlaune Feigle
Franklin Heller
Galen Hellwarth
Gilbert Lee
Heather Hartmann
Heather Schimmel
Jan Krennerich
Jenny Eberhart
Jess Seandel
Jillian Myers
Judy Hellwarth
Kara Iqbal
Katy and Ben Lyvers
Kelsey Chrisco
Keri Page
Kimberlj Shumate
Kimberly Kelleher
Kisti Wright
Kyle Elmore
LeAnn Gaerke
Linda Bobinger
Lindsey Tanner
Madison & Andrew Dehel
Malinda Wade
Manya Scheps
Marie Walton
Mark Coleman
Megan Bailey
Megan DeRuiter
Meredith Willard
Michelle Nichols
Mike Giacaman
Nancy Frydrych
Nick Severtson
Nicole Benavente
Patrick Tuckey
Quantavia White
Ray Zablocki
Renee Berkowitz
Sam Trocquet
Samantha Klein
Sandi Gilmore
Sarah Matthews
Sarah Outman
Sarah Thimmesch
Sean Tuggle
Shannon Roque
Sherri Worthen
Smiling for Samuel
Stacy Court
Stacey Kendall
Stephanie Chun
Sue Ann Choate
Summer Grace Lopez
Susan Cobin
Suzie Richards
Teresa Keffeler
The Hegarty Family
Thorpe McConville
Tiffany Pasillas
Tim Taylor
Tracy Espinosa
Vanessa Quigley
Veap Tale
Vicky Benavente
Victoria Kenney
Wandelin Littlejohn
Ward Family